Resources and Links
The information contained in this Resource Directory is intended as reference material only. The Caring Ambassadors Program makes no representation nor implies endorsement of any product or service, nor does it accept any responsibility for any claims made by any resources listed.
Patient Assistance Programs
The American Cancer Society (ACS) offers programs that help cancer patients, family members, and friends cope with the treatment decisions and emotional challenges they face.
Internet site: www.cancer.org
The Brain Tumor Society is a national nonprofit agency that provides information about brain tumors and related conditions for patients and their families. Financial assistance is given through the agency’s BTS CARES Financial Assistance Program. This program provides supplementary financial assistance to individuals experiencing financial need. This program covers specific nonmedical costs related to a primary brain tumor diagnosis. Direct medical expenses are not covered.
Internet site: http://www.tbts.org
CancerCare is a national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Financial assistance is given in the form of limited grants for certain treatment expenses.
Chronic Disease Fund (CDF) The Chronic Disease Fund is an independent 501(c)(3) non-profit charitable organization that helps underinsured patients with chronic disease, cancers or life-altering conditions obtain the expensive medications they need.
Telephone: (972) 712-0201
Internet site: http://cdfund.org/
The Healthwell Foundation The HealthWell Foundation® is a non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs.
Internet site: www.healthwellfoundation.org
Imerman Angels Imerman Angels is a one-on-on cancer support service that partners a person fighting cancer (“fighter”) with someone who’s beaten the same type of cancer (“survivor”).
Internet site: www.imermanangels.org
National Cancer Institute (NCI) Financial Assistance and Other Resources for People With Cancer Listing of Government agencies, organizations, and programs that are designed to provide assistance for cancer patients and their families.
Partnership for Prescription Assistance The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them. Many will get them free or nearly free.
Internet site: https://www.pparx.org/about.php
Patient Access Network Foundation (PAN) Patient Access Network (PAN) Foundation is an independent, not-for-profit established in 2004, dedicated to assisting patients who cannot afford the out-of-pocket costs associated with their treatment needs. With 20 disease-specific funds, PAN assists the underinsured in accessing health care treatments.
Telephone: 866-316-PANF (7263)
Internet site: www.patientaccessnetwork.org
Patient Advocate Foundation Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.
Internet site: http://www.patientadvocate.org/
Pharmaceutical Company Patient Assistance Programs
Some pharmaceutical companies offer prescription drug programs to make specific drugs available to people who could not otherwise afford them. Generally, your doctor must apply to these programs on your behalf. However, you can call and obtain the applications and information to help speed the process. Eligibility requirements and program operations vary greatly from one program to another.
Following are listings of pharmaceutical company patient assistance programs for some of the drugs commonly used by people with lung cancer.
Amgen, Inc. – Amgen’s patient assistance programs are a continuum of services designed to provide access through free goods and other support services to qualifying uninsured and under-insured patients. In addition, Amgen makes donations to third-party co-pay assistance foundations. To enroll, please call the appropriate hotline number listed below or learn more about available programs by choosing a product from the menu below.
Internet site: http://www.amgen.com/patients/assistance.html
Bayer Corporation – The Bayer Healthcare Pharmaceuticals patient assistance program offers free medication to people who otherwise cannot afford their medications. Patients must meet financial and other program specific criteria to be eligible for assistance. To find out how to apply for medication assistance register for free at www.RxAssist.org.
Bristol-Myers Squibb Company – The Bristol-Myers Squibb Patient Assistance Foundation, Inc. is a non-profit organization. The Foundation was established in 1998 to provide temporary assistance to qualifying patients with a financial hardship who generally have no private prescription drug insurance and are not enrolled in a prescription drug coverage plan through Medicaid or any other federal, state or local health program.
Interent site: http://www.bmspaf.org/
Celgene Patient Support- Celgene Patient Support® provides free and personalized assistance for patients’ access and reimbursement needs.
Eli Lilly and Company, Lilly Oncology – For Gemzar® and Alimta®, Lilly provides assistance with obtaining reimbursement. If patients do not have insurance and are unable to obtain other financial assistance, they may be eligible to obtain Lilly oncology products through our patient assistance program. For information about obtaining reimbursement assistance and patient assistance, visit the Gemzar or Alimta websites.
Genentech, Inc. – Genentech Access Solutions helps patients access their medicines and explore possible solutions to coverage or reimbursement issues. For patients and their health care providers, Genentech Access Solutions provides: coverage and reimbursement, patient assistance, and informational resources. Call (866) 4 ACCESS / (866) 422-2377 between the hours of 6 a.m. and 5 p.m. PST Monday through Friday or 24/7 through our website https://www.genentechaccesssolutions.com/index_pc.jsp
GlaxoSmithKline (GSK) – “GSK For You” features information on patient assistance programs from other resources, too. Please browse our site to see if you may be eligible to save on your prescription drugs. GSK is here to assist you with your prescription drug coverage needs.
Internet site: http://www.gskforyou.com/index.htm
MedImmune, Inc. – The MedImmune, Inc. patient assistance program offers free medication to people who otherwise cannot afford their medications. Patients must meet financial and other program specific criteria to be eligible for assistance. To find out how to apply for medication assistance from the MedImmune, Inc., register at www.RxAssist.org.
Merck Patient Assistance Program – Sometimes, affording prescription medicines can be difficult. That’s why at Merck, we have created the Patient Assistance Program—to keep affordable medicines within your reach. This private and confidential program provides medicine free of charge to eligible individuals, primarily the uninsured who, without our assistance, could not afford needed Merck medicines.
Internet site: http://www.merck.com/merckhelps/patientassistance/home.html
Novartis Pharmaceuticals -Novartis Oncology Reimbursement Program PAP Enrollment – Novartis is committed to providing access to our medications for those most in need through the Novartis Pharmaceuticals Corporation’s Patient Assistance Program (PAP). PAP provides assistance to patients experiencing financial hardship who have no third party insurance coverage for their medicines.
Ortho Biotech Products – The OrthoBiotech Products patient assistance program offers free medication to people who otherwise cannot afford their medications. Patients must meet financial and other program specific criteria to be eligible for assistance. To find out how to apply for medication assistance from the OrthoBiotech Products register at www.RxAssist.org.
Pharmacia Corporation – TreatFirst is a reimbursement counseling and patient assistance program for Pharmacia Corporation’s single-source oncology and supportive care therapy products. The program is designed to provide reimbursement support and assist patients who are financially needy, receiving outpatient care in the US by a US physician.
Internet site: http://www.patientsinneed.com/general_info.asp
Purdue Pharma – The Purdue Pharma patient assistance program offers free medication to people who otherwise cannot afford their medications. Patients must meet financial and other program specific criteria to be eligible for assistance. To find out how to apply for medication assistance from the Purdue Pharma patient assistance program, at www.RxAssist.org.
Sanofi-aventis – The sanofi-aventis patient assistance program offers free medication to people who otherwise cannot afford their medications. Patients must meet financial and other program specific criteria to be eligible for assistance. To find out how to apply for medication assistance from the sanofi-aventis patient assistance program, register for free at www.RxAssist.org.
Consumer Government Resources
Americans with Disabilities Act Information Line
Phone: 800-514-0301 (voice) or 800-514-0383 (TDD)
Centers for Disease Control and Prevention
Internet address: www.cdc.gov
Consumer Health Information Research
Department of Justice
Internet address: www.usdoj.gov
Equal Employment Opportunity Commission
Phone: 800-669-4000 (voice) or 800-669-6820 (TDD)
To request documents:
Phone: 800-669-3362 (voice) or 800-800-3302 (TDD)
Food and Drug Administration (FDA)
Office of Special Health Issues
Parklawn Building, HF-12
5600 Fishers Lane
Internet address: www.fda.gov
Contact the FDA to report side effects or other problems with drug treatment.
Food and Drug Administration (FDA), Single Patient Investigational New Drug Program
Patients who are not eligible for a clinical trial and who are in an immediate medical crisis may be able to receive drugs that are not yet FDA-approved. Your doctor would have to apply to the FDA for permission to use the drug, an approval known as a Single Patient IND for Compassionate or Emergency Use. Contact information appears below. The FDA usually responds to an application within 24 to 48 hours.
Telephone: CDER Oncology Drug Products (most cancer drugs): 301-594-2473
CBER Oncology Branch (for biologicals): 301-827-5093
Internet site: www.fda.gov/cder/cancer/singleIND.htm
Food and Nutrition Information Center
National Agricultural Library/USDA
10301 Baltimore Avenue, Room 304
Beltsville, MD 20705-2351
Internet address: www.nal.usda.gov/food-and-nutrition
This site provides a dietary supplement resource list.
Medicare – Equipment and Supplies Program
Medicare contract suppliers or by calling 1-800-MEDICARE (1-800-633-4227).
National Center for Complementary and Alternative Medicine Clearinghouse
Internet address: www.nccam.nih.gov
You can request free information either on-line or by phone.
National Council Against Health Fraud
National Digestive Diseases Info Clearinghouse
Internet address: digestive.niddk.nih.gov/
You can request free information either on-line or by phone.
National Foundation for Infectious Diseases
Internet address: www.nfid.org
National Institutes of Health
Internet address: www.nih.gov
National Library of Medicine
Internet address: www.nlm.nih.gov
Social Security Disability Line
U.S. Department of Health and Human Services
Internet address: www.healthfinder.com
Resources for Kids
CancerCare for Kids®
Children and teens who are affected by cancer have special needs and concerns. That’s why CancerCare has a special program called CancerCare for Kids®. It’s all part of the free, professional services CancerCare provides, but focused on the particular needs of children and parents.
Since 2000, Camp Kesem has given children affected by a parent’s cancer the opportunity to just be kids. The ever-expanding Kesem community engages in camp activities like sports, arts and crafts, and drama to give campers a fun-filled week.
Children’s Treehouse Foundation
It’s a given. Cancer affects the entire family. Yet in too many situations, the undeniable psychosocial impact on the children whose parent has cancer goes unattended.
Cancer Hope Network
Telephone: 877-HOPENET (877-467-3638) or 908-879-4039
Cancer Hope Network is a nonprofit organization that offers one-on-one support for people living with cancer and their families by matching those seeking support with trained volunteers who been through similar experiences.
Cancer Support Community
Telephone: 888-793-WELL (888-793-9355) or 513-421-7111
The Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer.